MND Association - Nottinghamshire Branch

Non-Profit
ALS/MND Dedicated

Coverage: Nottinghamshire. Main meetings: Mapperley Plains Social Club, Mapperley, Nottingham NG3 5RH (2nd Thursday monthly, 2:15-3:45pm). North Nottinghamshire meetings: Bassetlaw Hospice, Cedar House, Retford Hospital, North Road, Retford DN22 7XF (1st Wednesday monthly, 11am-12:30pm). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office), Nottinghamshire, United Kingdom

Overall Score
4.0 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
4/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

4/5

Number of service categories this organization offers.

  • ✓2 service categories listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Coverage: Nottinghamshire. Main meetings: Mapperley Plains Social Club, Mapperley, Nottingham NG3 5RH (2nd Thursday monthly, 2:15-3:45pm). North Nottinghamshire meetings: Bassetlaw Hospice, Cedar House, Retford Hospital, North Road, Retford DN22 7XF (1st Wednesday monthly, 11am-12:30pm). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office)

Mission

Volunteer branch with independent website (mnd-notts.org.uk) covering Nottinghamshire. Runs two territorial support groups including the long-running Mapperley Plains Social Club monthly meeting. Works closely with healthcare professionals from the MND Care Centre at Queen's Medical Centre (QMC) Nottingham. Current Chair has been involved since 1986 after his mother's MND diagnosis. Produced 6-minute awareness video in 2016 for MNDA Awareness Month. Active sister-branch relationships with Leicestershire and Rutland, Derbyshire, and Lincolnshire branches. Contact committee member Mike Cole for volunteering. — Regional Patient Support, Association Visitor Home Visits, Peer Support Groups, Fundraising, Awareness Raising, Financial Support Funds, Equipment Loans, Bereavement Support, Volunteer Network

Services
Non-Profit
Advocacy

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