MND Association - Birmingham and Solihull Group

Non-Profit
ALS/MND Dedicated

Birmingham area; meetings at Marie Curie and St Giles hospices; branch address via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office), West Midlands, United Kingdom

Overall Score
4.0 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
4/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

4/5

Number of service categories this organization offers.

  • ✓2 service categories listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Birmingham area; meetings at Marie Curie and St Giles hospices; branch address via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office)

Mission

Volunteer-run group supporting people with MND, families and carers across Birmingham and Solihull. Runs three local support groups in partnership with Marie Curie and St Giles hospices. Area Support Coordinator Marianne Grant. Notable volunteer: Hazel Carter, author of 'Life's Good', who donates book sale proceeds to the branch and two local hospices. Actively recruiting Events Coordinators and Association Visitors. Facebook group with over 900 members. — Regional Patient Support, Association Visitor Home Visits, Peer Support Groups, Fundraising, Awareness Raising, Financial Support Funds, Equipment Loans, Bereavement Support, Volunteer Network

Services
Non-Profit
Advocacy

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