Isle of Man MND Association

Non-Profit
ALS/MND Dedicated

Coverage: Isle of Man (self-governing Crown Dependency). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office), Isle of Man, United Kingdom

Overall Score
4.0 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
4/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

4/5

Number of service categories this organization offers.

  • ✓2 service categories listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Coverage: Isle of Man (self-governing Crown Dependency). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office)

Mission

Affiliate branch of the UK MND Association serving the Isle of Man — a self-governing British Crown Dependency. Provides local patient support, awareness raising, and fundraising. Coordinates with Manx healthcare services and Liverpool/Manchester MND Care Centres for specialist referrals. — Regional Patient Support, Association Visitor Home Visits, Peer Support Groups, Fundraising, Awareness Raising, Financial Support Funds, Equipment Loans, Bereavement Support, Volunteer Network

Services
Non-Profit
Advocacy

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