Duke University ALS Center

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Lead: Prof. Richard Bhatt. Major Southeast US research flagship; home of ALSUntangled and ALS Reversals programs; ALS Association Certified Treatment Center of Excellence; Duke Neurology ranked #1 in North Carolina by US News & World Report 2025-2026. Lead: **Dr. Richard S. "Rick" Bedlack, Jr., MD, PhD, MS** — widely known for his bright, colorful wardrobe and patient-centered approach; MD/PhD in Neuroscience at UConn; Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research Science all at Duke; **160+ ALS articles published** (per Duke institutional profile); awards include:. ALS Association Certified Treatment Center of Excellence — "one of approximately 100 in the world dedicated to the diagnosis and treatment of ALS" Duke Neurology ranked #1 in North Carolina by US News & World Report 2025-2026 ALSUntangled — international social-networking research platform led by Bedlack; uses Twitter/X to investigate alternative and off-label ALS treatments; flagship patient-engagement research project in global ALS community ALS Reversals program — studies the rare subset of ALS patients who unexpectedly recover most or all lost motor function; goal is to understand mechanism and make reversals more common ALS TDI (ALS Therapy Development Institute) partnership — announced 2021 for ALS Reversals research collaboration