Karolinska University Hospital ALS Center

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Lead: Dr. Caroline Ingre. National flagship ALS center + Clinical Trials Hub. Lead: Dr Caroline Ingre, MD, PhD — Associate Professor, specialist in neurology (since 2013) and neuromuscular medicine (since 2015), senior consultant (since 2017), Head of ALS Center since December 2013. Institution: Karolinska Universitetssjukhuset (Huddinge and Solna sites). Most active ALS clinical trial center in the Nordics (status since 2018 when Stoppa ALS / Sebastian & Kristin Penner funded the Karolinska ALS Clinical Trial unit) Founded the Swedish ALS/MND Quality Registry (NMiS) in 2015 — national MND/ALS register Karolinska Treatment Center — national center solely focused on ALS clinical trials, hosts the Nordic component of international industry trials Stockholm biobank — tissue, hair, blood, CSF collected every 6 months from Stockholm-area ALS patients Karolinska ALS Clinical Research Group — research spans biomarkers, genetics, neuroimmunology, neuroimaging, cardiac involvement in ALS, diagnostic delay, cognition/behavior (including validating the Swedish Karolinska version of the ECAS — SK-ECAS), PROMs