Verein ALS Schweiz

Number of service categories this organization offers.

• ✓2 service categories listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

Swiss national ALS patient organization (est. 2007) — ZEWO-certified; provides "ALS Care" trained-specialist consulting to hospitals, home care, and GPs. Lead: **Martin Knoblauch** — Bereichsleiter Zentrale Dienste, Therapieheim Sonnenblick; former Geschäftsführer of the **Schweizerische Muskelgesellschaft**; Vice-President **Koordinationsstelle Seltene Krankheiten (kosek)**; board member **Pro Raris**; BWL degree from University of Zurich; expertise in fundraising and knowledge management. "ALS Care" — trained-ALS-specialist consulting available to hospitals, Spitex home nursing organizations, care institutions, and GP practices nationwide; bookable for education, advice, and clinical specialist support Patient services: Hilfsmittel (assistive devices) Sozialberatung (social counseling)