APELA (Associação Portuguesa de Esclerose Lateral Amiotrófica)

Number of service categories this organization offers.

• ✓2 service categories listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

Portugal's dedicated ALS-specific patient association — advocacy, caregiver support, BRAINTEASER research partner. Via Verde para Pacientes de ELA — Parliamentary Petition No. 94/XIV/1 advocating for a fast-track ALS care pathway in the Portuguese health service; report delivered to Assembleia da República "Sobrecarga dos Cuidadores Informais na ELA" — APELA's year-long informal-caregiver burden study conducted in partnership with intra- and extra-hospital teams "Movimento Cuidar dos Cuidadores Informais" — APELA is a lead organization in the national informal-caregiver advocacy movement, recognizing the thousands of informal caregivers across Portugal "Recomendações sobre Ventilação Mecânica Domiciliária em Adultos" — APELA actively promotes Portugal's national home mechanical ventilation guidelines (critical for ALS respiratory care)