Universidad de Chile Neurology Department (South Division) - LAENALS Affiliate Site

Research
Multi-Condition · Serves ALS/MND

Santiago, Chile

Research
Overall Score
3.0 / 5.0
3 of 6 dimensions scored · 3 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Advocacy Reach
N/A
Accessibility
2/5
Patient Support
N/A
Data Completeness
4/5
Network Connectivity
N/A
3 of 6 dimensions scored · 3 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

2/5

How easy it is for patients and families to reach this organization.

  • —Has website
  • ✓Has phone number
  • —Has email
  • —Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

4/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • —Address
  • ✓Phone
  • —Email
  • —Website
  • ✓Mission

Network Connectivity

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Mission

Chile's flagship academic ALS network — LAENALS founding member country institution; integrated across three major Santiago hospitals + Chilean geroscience center. LAENALS founding country institution — Chile is one of three founding LAENALS countries (with Cuba and Uruguay) Chilean ALS epidemiology (2018 LAENALS data): 1.39 per 100,000 crude prevalence (adult population aged 15+) 1.08 per 100,000 annual incidence in 2018 Shortest Latin American median survival — 24 months (13.5-33.5 IQR) from onset — lowest of the three LAENALS countries

Services
ALS Research and Data Sources

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