University Hospital Bonn - ALS Outpatient Clinic

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• —Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• —Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Contact point at University Hospital Bonn for patients with ALS, SMA, SBMA, and other motor neuron diseases. Head: PD Dr. med. Patrick Weydt. Multidisciplinary team of 2 medical specialists, 1 ALS pilot, 1 psychologist, and several student assistants. Currently accompanies 250+ ALS patients. Services include outpatient and inpatient care, PEG placement, NIV (non-invasive ventilation) adjustment, swallowing diagnostics, genetic counselling, and participation in observation and therapy studies. — ALS Clinic, Multidisciplinary Care, Specialized Neurology, Neuromuscular Disorders, Clinical Trials, Research, Genetic Testing, Biomarker Analysis, MND-NET Member, PEG Placement, NIV Adjustment, Genetic Counselling, ALS Pilot Care Coordinator